The New Jersey Carcinoid Cancer NETwork has been serving the NJ community since 2001, when we started as the NJ Chapter of the Metro New York Carcinoid Support Group. When the metro group was formed, it was thought that because Carcinoid and other Neuroendocrine Tumors (NETs) were so rare, it would require a large geographic area to create a comprehensive group. With the advent of increased awareness, in part due to support groups, we are now able to provide a more localized group to better serve everyone.
We formerly held in-person meetings most months and are now meeting virtually every month. You can request an invitation to a meeting by writing to pat@njcarcinoidnetwork.org . Our meetings are far from pity parties. Instead, we exchange information about diagnosis, treatment, and our research and experiences with all types of Neuroendocrine Tumors (NETs). We laugh more than we cry and are more like a support group without the tissue boxes. At these meetings, we can discuss details that would often be lost through any other means of communication other than face-to-face. Click here for more details about those meetings.
Browse our website for more information about the NJ Carcinoid Cancer NETwork. Please note that the website is a work in progress, so you’ll want to check back for newly added material. If you have any questions or would like to speak with a NJ Carcinoid Cancer NETwork representative, please email Pat at pat@njcarcinoidnetwork.org or call 732-939-0099.
Our mission is to promote awareness of Carcinoid and other Neuroendocrine Tumors (NETs) and to provide shared information to patients, caregivers, and medical professionals to assist them in managing their disease, and to provide treatment and diagnostic options that may not be common knowledge. Can’t make it to a meeting? Contact us with any questions you may have.